Active Columns:

Mar 21, 2010 - Deja Vu
Mar 28, 2010 - SeizurePalooza
Oct 18, 2009 - Born to Run
Oct 12, 2009 - Give it a Rest
Oct 2, 2009 - ...Bitch on a Budget
May 12, 2009 - The Brazilian
Feb 14, 2009 - My date with "Adam"
Feb 6, 2009 - Valentine's Day? BAH!
Feb 2, 2009 - Won't get Fooled...
Jan 14, 2009 - Here Kitty Kitty...
Jan 12, 2009 - On The Mend
Dec 12, 2008 - A Not-So-Merry Christmas
Dec 8, 2008 - Ivan's Move
Nov 30, 2008 - Quick Update
Nov 7, 2008 - And God Says...
Nov 6, 2008 - It's Not Looking Good...
Sep 24, 2008 - Shake Hands With The Devil
Sep 23, 2008 - It's Just Like Paris
Sep 17, 2008 - Memoirs of a Catholic...
Sep 16, 2008 - Suicidal Tendencies
Sep 15, 2008 - Fat is a Feminist Issue
Sep 14, 2008 - Get Me Out of Here
Sep 13, 2008 - Living with the 'rents
May 20, 2008 - I'm Not Dead Yet
May 19, 2008 - PSA
Apr 29, 2008 - Are You There God?
Apr 14, 2008 - Frightening the Neighbors
Mar 17, 2008 - The Border
Mar 10, 2008 - The Vibrator
Oct 8, 2007 - Ivan the Terrible
Sept 20, 2007 - Depression?
July 19, 2007 - An Update
July 3, 2007 - A Good Catch
March 26, 2007 - Crushed
March 19, 2007 - Adieu le feu
March 12, 2007 - Taking a Chance
Feb 26, 2007 - Biological Clock
Oct 16, 2006 - Determination...
July 15, 2006 - The Puppy
July 10, 2006 - The Gastroenterologist
July 8, 2006 - The Neurology Ward
Nov 21, 2005 - Who Would You Do?
Nov 14, 2005 - Shaved Pussies
Nov 7, 2005 - Avoidance
Sep 26, 2005 - love, kindness, missed chances
Aug 2, 2005 - Geoff the Entomologist
Aug 1, 2005 - Revenge
May 11, 2005 - Going for it
May 21, 2005 - The Green Thumb
Apr 22, 2005- Barry Again
Apr 21, 2005 - The Rectal Syringe
Apr 18, 2005 - Butterflies of Love
Apr 17, 2005 - No escape
Apr 10, 2005 - Meeting Colin Farrell
Oct 17, 2004 - Oops, I've done it again
Oct 21, 2004 - Lust
Oct 30, 2004 - Of Mice and Men
Nov 5, 2004 - What the FUCK...?
Oct 12, 2004 - The US Election
Oct 11, 2004 - MegaCleanse
Oct 5, 2004 - Life Sucks
Jul 8, 2004 - The Horoscope
Jun 15, 2004 - Seven Deadly Sins
Apr 24, 2004 - Going Out
Feb 24, 2004 - Tails
Jan 24, 2004 - The Decorator
Aug 25, 2003
July 18, 2003
July 17, 2003
July 16, 2003
May 19, 2003
May 18, 2003
May 17, 2003
May 16, 2003
May 1, 2003
Mar 10, 2003
Jan 25, 2003
Jan 24, 2003
Jan 23, 2003
Apr 30, 2002
Apr 30, 2003
May 29, 2002
May 12, 2002
May 18, 2001
January 10, 2001
December 11, '00
April 17, '00
But I'M NOT BITTER...
The Goddess of battle, strife, and destruction explains it all for you

Deja Vu

by

March 21, 2010

Ready for some dťjŗ vu?

Iíve been back on topamax for a while Ė much against my wishes Ė and at least in the beginning, I thought things would be different than they were the last time.

I was wrong.

This drug is poison, pure and simple.It sucks at seizure control and the side effects are brutal.

Behold.  The first bit is what medical reviews and studies have to say about it.

  • Recently the FDA has released warnings about the possibility of the development of suicidal ideation on Topamax. This was more common in people taking the medication for epilepsy rather than other conditions.
  • Topamax can have negative mood effects such as agitation and anxiety and emotional lability is often reported.

(Emotional lability is the technical term for "crazy as a bag of hammers".)

And this is what others in chat rooms have to say about their experience with it.

  • I am a retired physician who has had problems with epilepsy. TOPAMAX, however, is not the answer. It caused severe paranoia, delusional thinking, psychosis and more than I can share. The manufacturer has had multiple reports but have NOT reported them to the FDA. I know because I have spoken to them.
  • I am taking Topamax 100mg I'm getting crying sessions mixed with very strong depression focused on one thing...death.  This all adds to my depression.  I keep saying to myself " this is nuts" and thinking maybe it is the medicine since I never felt this way before
  • Topamax alone made me have crying fits and suicidal thoughts. I was on 100 mgs.  (This is same dose I'm on, incidentally.)
  • I was just curious as if to anybody had any POSITIVE stories about taking Topamax. All I have been reading is negative, negative, negative.

 

  • My 17-year-old son had his first grand mal seizure three months ago...The neuro put him on Topamax--a slow titrate and was going to peak at 150 mg daily...however, this nasty drug took a wonderful, even-keeled, smart and kind kid and turned him into an aggravated, mean-spirited and suicidal kid in a matter of four weeks.He is tearful, moody and there was no change in appetite...anyway, they have switched him to Depakote...am scared to death of that too! We will see how this goes...
  • For my son, the neuro's directions were too fast and furious which caused my son to have severe and I mean severe, adverse reactions...We are just not willing to work with topamax anymore so we are not trying depakote...and for the first four days, his personality has almost returned! He is more talkative and I saw his wonderful smile for the first time in a couple months!

Isnít this jolly?Shit like this is *exactly* why I went off the drug the last time and furiously resisted being put back on it again.

The good news?Once the drug is purged from your system, it leaves no lasting effects.

Topamax is routinely prescribed for a number of things besides epilepsy: migraines, smoking cessation and bipolar disorder being among them.For some reason, the studies show that the side effects noted above are more severe in patients with epilepsy (like me).One poor bastard who was 77 years old and perfectly sane before he started taking this stuff drank antifreeze in an effort to kill himself because the suicidal thoughts engendered by this drug were far too overwhelming to resist.And they sneak up on you too.If you donít know theyíre coming and why, they seem like perfectly rational and reasonable thoughts.

This time around, the mood swings were off the hook.I could be fine one hour and the next I could be crying in the bathroom.I could be a perfectly sane and lucid at 11 in the morning and the King of France by lunchtime.My paranoia levels would rival those of the Unabomber.Iím manic, constantly crying and extremely suicidal.

But I know itís just the drugs.That being said, itís very distressing to experience.

Iím going off this again and Iím never, never, never going back on it.I do not care if this means that Iíll no longer be a viable candidate for a liver transplant.I do not care if I seize eleventy billion times a day.Both of these things fall into the category of ďthe lesser evilĒ.

Girls, please do not take this medication.There *are* alternatives Ė I can go back to a really small dose of dilantin.It does little to control my seizures reliably but the side effects are minimal compared to this and Iím getting a little tired of being called crazy to my face.Itís also becoming a bit tedious to luxuriate over thoughts of hanging myself.

And if anyone out there is on topamax Ė or any other anticonvulsant (they ALL can cause this type of side effect, but to varying degrees) Ė and is experiencing the feelings Iíve been writing about here, get thee to an Emergency Room pronto.It is where Iíll be going once I sign off on this column.

Do not listen to what the meds are telling you.You are still in there somewhere.Youíre only nuts because the drug is making you that way.This is not a permanent condition so it doesnít call for a permanent solution.No suicide, ladies Ė donít you dare.Itís just the drugs.

But a word of warning:if youíre on anticonvulsants and youíre feeling severe side effects and want to get off the meds, DO NOT simply go cold turkey.It will earn you a back stage pass to Seizurepalooza.Get to a doctor and have her wean you off your meds over the course of a few weeks.You may need some anti anxiety meds to cope with the fallout for those few weeks.

Hang in there (again, without the rope).

Till next time,

 

M.

PS.I just got back from the Emergency Room.They were great.The doctor said he hears this all the time about topamax, so he began the process of switching me back to dilantin.This is a dangerous time:the next three weeks will bring seizures with them but the ER doc was smart and kind enough to add sedation to the mix.He also arranged an emergency neurology consult for a few days from now.

Donít take this drug, ladies.I canít say it often enough.Do not take this drug.



Copyright© the Morrigan & Heartless Bitches International (heartless-bitches.com) 2010
go to top

Pause your cursor over each link below for a more detailed description

Home
Search HBI
HBI FAQ
   Rants
   Collected Quotes
   The Manipulator Files
   Nice Guys? BLEAH
   Links
    I'M NOT BITTER...
   Auntie Dote
   Honorary HBs
   Adult Books
   Kids Books
   Privacy Policy
   Awards
   HBI Sitings

---

Want to link to HBI?



  Want to know when we update? Subscribe to our "What's New" RSS Feed

(What is an RSS Feed?)


Get SharpReader - our favorite RSS aggregator - it's free!

If you don't have a Newsreader, you can subscribe to updates via email:

Enter your Email


Powered by FeedBlitz

Add this Content to Your Site